Other Disabilities/ Diagnoses and Rare Disorders
Not finding what you’re looking for? Additional resources are available by calling our Helpline at (800) 578-2592.
Websites
- Birth Injury Guide
- Brain Injury Association
- Charge Syndrome
- Dyspraxia USA
- Genetic Alliance
- California Hands and Voices
- DHCS Parent Resources
- Martindale’s Language and Translation Center — Sign language databases online.
- Mobius Syndrome Foundation
- Mums National Parent to Parent Network
- NORD (National Organization for Rare Diseases)
- NORD's Parent Support Community
- National Fragile X Foundation
- NIH Office of Rare Diseases Research — Includes GARD (Genetic Alliance Against Chronic Respiratory Diseases)
- Rare Chromosome Disorder — Families
- Rare Genomics Institute
- RareShare — Connecting Rare Disease Patients
- Sotos Syndrome
- Tourette Syndrome Association, Inc.
- United Cerebral Palsy Association